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We help fund advocates to attend medical, education, scientific, research, and support meetings around the world. We want to gather information from the source, ask questions, and raise awareness of the patient/advocate perspective. When we first started, this was largely unknown, but now many organizations, government agencies, and groups have advocate participants on their review or even planning committees. We often attend as Advocate Press because we list meetings in our Conference Announcement section, and then post our summaries online. We like to announce when there is a new summary. The summary is written by and in the style of the individual who attended, we don’t edit people’s observations, we appreciate them. Nowadays we can use Twitter @AnnieAppleseed or Facebook as well as our monthly e-newsletter to announce a new summary (opt-in if you want). We have some pretty terrific events covered as you can discover. You will also find articles on issues that require the intervention of advocates. In the past 5 years, many articles have appeared in medical journals and newspapers indicating troubled areas. These include research, publication, funding, treatment, recruitment to clinical trials, and much more. Ann Fonfa, president Annie Appleseed Project was asked to give the Patient Perspective at a meeting of the Guidelines International Network. Here’s what they say about themselves: Our mission is to lead, strengthen and support collaboration in guideline development, adaptation and implementation. As a major player on the global healthcare quality stage, G-I-N facilitates networking, promotes excellence and helps our members create high quality clinical practice guidelines that foster safe and effective patient care. Our networking role is enhanced through annual conferences, region-specific communities and topic-specific working groups in which participants exchange knowledge and improve methodology. We welcome your participation in our vibrant community and are delighted to share, through this web portal, a wide variety of support tools and publications to enhance guideline development and knowledge transfer.

Organizer Name

ANNIE APPLESEED PROJECT

About Organizer

Although this Project began as Ann Fonfa’s personal answers to questions (audio) on natural(CAM) therapies, it has become a nationally recognized organization, and is now a nonprofit corporation in the state of Florida. (May 23, 2003)and tax exempt, 501 (c)3 as of August, 2003. We are located at 7319 Serrano Terrace, Delray Beach, FL 33446-2215. (561) 749-0084 Best means of contact is email: [email protected] From its inception the Annie Appleseed Project decided to Challenge the Existing treatment paradigm, to Question the existing research methods and subjects, and to Propose new directions for both ending with true Integrative Oncology. Thus the program name Cheqpt, designed to bring complementary, alternative therapies to the mainstream as soon as may be, while serving as a place where all ideas are scrutinized.

About 90,000 visitors see our site monthly, and thousands have heard Ann Fonfa, and other of our volunteer advocates speak at various meetings around the world.

Other people with cancer (all volunteers) have gotten involved and produced reports on treatment responses, clinic visits, meetings attended and much more. We now offer financial support to advocates who attend meetings, write reports, hand out our brochures, etc. We need your support to continue to represent the people who use complementary or alternative cancer therapies. Things have improved over the years since we began this work, but it still comes down to each individual with her or his medical team. And insurance does not yet cover CAM. Here is Annie Appleseed Project’s EEO Policy.  At this time we are an all-volunteer cancer Advocacy nonprofit and have no employees.  We offer our services to all.

Organizer Website

https://www.annieappleseedproject.org/

Organizer Address

Florida, United States

Event Link

https://www.annieappleseedproject.org/many-paths-to-wellness.html

Primary Phone

(561) 749-0084

Primary Email
City

Florida

Country

United States of America

Event Date
Feb 22
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Event Type

Paid

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